Congratulations to Dave and George, trustees of Research SMA for completing the Brighton marathon!
Running 26.2 miles is no small feat. Doing it in a brand-new charity mascot costume? That’s a whole different level of dedication – and a perfect reflection of the passion that drives our trustees. This year, two of our incredible trustees, Dave and George, took on the Brighton Marathon in unforgettable style. Not only did […]
A New Name, the Same Mission — Rally Round Rupert is now ResearchSMA
Rally Round Rupert was born from a place of hope, and community spirit, after our son Rupert was diagnosed with Spinal Muscular Atrophy Type 1, at six weeks old. Our mission statement since establishing the charity has been clear: “To raise awareness of SMA and funds in support of clinical research” And after three years […]
Rally Round Rupert raises over £109,000 raised for SMA clinical trials
In June 2024 100 walkers embarked on a 100 mile walk challenge, in support of Rally Round Rupert Charity – the ‘100 Walk 100’ challenge – a 100-mile challenge along the iconic Cotswold Way. This incredible 3 day event brought together walkers of all ages and abilities to support a worthy cause and enjoy the […]
100 Walk 100 2024 – The Cotswold Way Challenge
Are you ready for an adventure that combines breathtaking scenery, physical challenge, and the opportunity to make a difference in the lives of children affected by spinal muscular atrophy? Look no further than the Cotswold Way Challenge, organised by Rally Round Rupert, a children’s charity dedicated to improving the lives of those affected by this […]
Meet Rupert: The Inspiration Behind the Charity
Meet Rupert: The Inspiration Behind the CharityIn this blog post, we want to introduce you to the incredible young boy who inspired the creation of Rally Round Rupert, a children’s charity dedicated to improving the lives of those affected by spinal muscular atrophy. His name is Rupert, and his story has touched the hearts of […]
SAPSMA Raises £623 to Support Rally Round Rupert
The St Albans Primary Schools Music Association (SAPSMA) has raised an incredible £623 for Rally Round Rupert. This generous donation will go directly towards funding vital clinical research to improve outcomes for children with Spinal Muscular Atrophy (SMA). SAPSMA, a volunteer-run organisation, hosted a Christmas carol service at St Albans Abbey Cathedral that showcased the […]
Rally Round Rupert Funds £100,000 for Groundbreaking ACE SMA Physio Trial at University of Oxford
Rally Round Rupert, a charity committed to improving the lives of children with Spinal Muscular Atrophy (SMA), has gifted an impressive £100,000 to the University of Oxford. This funding will support the innovative ACE SMA physiotherapy trial, a project poised to redefine care standards for children aged 1–10 diagnosed with SMA and treated post-symptomatically. The […]
Thank You Cassidy & Tate for championing SMA Awareness
Rally Round Rupert would like to extend a heartfelt thank you to Cassidy and Tate, the St Albans based estate agent, for their incredible support in raising awareness of Spinal Muscular Atrophy (SMA) and the vital work we do. Their dedication has made a significant impact on spreading the word about SMA and our efforts […]
Groundbreaking SMA Nutritional Study with GOSH and DeFENS made possible by Rally Round Rupert gift of £107,000
Rally Round Rupert has made a significant contribution of £107,000 to fund the SMA 4 Nutrition clinical trial, an important research project aimed at improving the understanding and treatment of spinal muscular atrophy (SMA) in infants and children. The trial, which began in October 2024, will be conducted over 24 months, with collaboration between Great […]
Rally Round Rupert releases a new video celebrating the upcoming charity challenge to raise funds for clinical research
Get ready to be inspired! The Rally Round Rupert Charity: Jurassic Coast 100 mile challenge 2025 video is here—and it’s guaranteed to light a fire under your walking boots! This epic 100 mile journey across the length of the Jurassic Coast isn’t just about breathtaking views; it’s about heart, hope, and helping those affected by […]
